Working with consumer partners
We partner with patients, carers, family, friends, and consumer organisations during all stages of research to make decisions about:
- research priorities: choosing topics and asking questions that are important to people
- research practices: how we do our research, what outcomes we measure, what the results might mean and how we share them
- research policy: how organisations support researchers and healthcare providers to do research with consumers.
Watch our video about consumer partnerships.
Governance
- MSH: NSQHS standard 2 – Partnering with consumers (internal link)
- MSH Consumer and Community Engagement Strategy 2023–2026
Guides and procedures
- Partnering with consumers in research: guideline [PDF 296.54 KB]
- Developing and displaying consumer information: work instruction (internal link)
- Delivering health literate consumer services: procedure (internal link)
Apply for a microgrant
The Health Translation Queensland Consumer and Community Involvement (CCI) microgrants program can help with funding for consumer partnerships. Email communications@healthtranslationqld.org.au for the expression of interest form.
It takes us about 2 to 4 weeks to assess micro grant applications. Make sure you include this as part of your project time frame.
Consumer engagement and consent form
Include the Consumer engagement and consent form [DOC 210.5 KB] when you apply for governance authorisation if a consumer is part of your research team and is:
- likely to be a co-author on any of your research publications
- listed as a co-investigator
- given data to analyse
- involved in writing the PICF or protocol
- involved in study design and or their work is being included.
Make sure you include the:
- title of your project
- ERM reference number
- information sheet or consent form signed by the principal investigator.
Payments
- Remuneration and reimbursement of consumer partners (internal link)
- Claim form: consumer partner remuneration and reimbursement (internal link)
Mandatory training for consumers
- MSH consumer partner orientation program, onboarding and exit (internal link)
- MSH consumer partner mandatory training (MSHLearn)
Consumer partners must do our orientation program, including mandatory training, before going to the first research meeting.
Research and other education
- MSH research induction (MSHLearn)
- Partnering with Consumers (PwC) Learning Program (MSHLearn) - search 'partnering with consumers' for the full list of modules
Other consumer partner resources
National Clinical Trials Governance Framework (NCTGF)
Health Translation Queensland (HTQ)
- HTQ: consumer and community involvement resources
- HTQ: our consumer and community involvement program
Health Consumers Queensland
Toolkits, training, videos and guides
- Australian Clinical Trials Alliance (ACTA): consumer involvement and engagement toolkit
- AccessCR webinar: demystifying the National Clinical Trials Governance Framework for health consumers
- PRAXIS Australia online courses
- CT:IQ — clinical trial site recruitment guide
- Telethon Kids Institute
- Monash Partners: consumer and community involvement learning modules
- Monash Partners: other consumer partner resources
- NHMRC: review of the statement on consumer and community involvement in health and medical research
- InformMe (Stroke Foundation) online course: working effectively with people with lived experience to design, conduct and promote stroke research
- InformMe (Stroke Foundation) online course: working well with stroke researchers
- Patient-Centred Outcomes Research Institute