COVID-19 Alert: We are currently at GREEN traffic light level - there is no restriction for coming to hospital to receive healthcare. Visitors are currently welcome at Metro South Health facilities, and are asked to help keep patients safe by maintaining physical distancing where possible and practising hand hygiene. See visitor restrictions and the latest Queensland Government information. [18 January 2023].
Consumers in research
Health service consumers and community members, are people with an interest in supporting the research activities of Metro South Health.
Metro South Health recognises that maximising the benefits of health research requires a community that guides and supports our research efforts. This involves informed consumers who participate in research and employees who effectively apply their knowledge and skills.
In addition to the provision of evidence becoming a compulsory component of many research funding schemes, researcher utilisation of the insight, experience and advice of consumers and community members is increasingly relevant to the development and undertaking of relevant research priorities and projects across Metro South Health.
Listed below are some guides, tools and existing mechanisms to assist individual researchers, research groups or departments to access this valuable input.
Consumers in Research Guideline
Guideline | GL2021/75 |
MSH Consumer Partnerships
MSH Consumer Partnering Agreement
- A MSH Consumer Partnering Engagement Agreement is required when the consumer is engaged as part of the research team and is likely to be included as a co-author on any resulting publications.
- To illustrate by way of examples, an agreement is required if the consumer is a listed co-investigator, given data to analyse, involved in writing the PICF or protocol, involved in study design and/or their work is being included.
- For more information please see the:
Template
- A word version of the MSH Consumer Partnering Engagement Agreement is linked below. Please include the research project/study title and ensure the agreement is signed by the relevant Prinicipal Investigator/Supervisor.
Toolkits and other resources
- Centres for Functioning Health Research: Partnering with Consumers in Research
- Health Translation Queensland: Consumer and community involvement resources
- Australian Clinical Trials Alliance (ACTA): Consumer Involvement and Engagement Toolkit
- ACCESSCR - Clinical Trial Solutions: Demystifying the National Clinical Trials Governance Framework for Health Consumers
- PRAXIS Australia online course: Consumer Involvement in Research: Module EC.11
- CT:IQ Site Recruitment Guide
- Telethon Kids Institute
- Monash Partners Consumer and Community Involvement learning modules and other resources
- NHMRC Review of the Statement on Consumer and Community Involvement in Health and Medical Research
- InformMe (Stroke Foundation): Working effectively with people with lived experience to design, conduct and promote stroke research
- InformMe (Stroke Foundation): Working well with stroke researchers
- BMC: Research Involvement and Engagement
Publications
- BJ Psych paper: Researchers looked at 374 Health research studies and reported trials with the highest levels of involvement were 4.12 times more likely to recruit to target
- PAREXEL: Patient-centric designs had faster study enrolment times and were 19 % more likely to be launched reported in the The Innovation Imperative: The Future of Drug Development, The Economist Intelligence Unit, 2018
- Clinical trials site recruitment optimisation: Guidance from Clinical Trials: Impact and Quality
Last updated 12 January 2023
Last reviewed 1 July 2021