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The Princess Alexandra Hospital has established a Cancer Collaborative Biobank (CCB) for tissue samples collected from patients with leukaemia, lymphoma and other related blood disorders. This will allow the conduct of laboratory research to enhance the understanding of these diseases. The CCB facility is housed at the Princess Alexandra Hospital in Brisbane, Queensland.
The following information may be of interest to patients/participants considering taking part in the CCB.
The CCB is being used by a range of scientists primarily from around Australia, but also by some international scientists also studying haematological disease (ie blood cancers, for example leukaemia, lymphoma and myeloma etc). The resource is open to any bona fide researcher undertaking haematological health related research, wherever they might be.
Whilst it is mostly Australian researchers working in academia that access CCB samples, the CCB hopes that the facility becomes a resource of value for scientists around the world and also for industry as we believe it is a resource of value, that can be used to improve treatments and the health of future generations.
The CCB has been given Metro South Health Human Research Ethics Committee (HREC) approval. All policies and procedures of the facility abide by the National Statement on Ethical Conduct in Human Research (2007) ('National Statement').
Participant privacy is respected. All samples are anonymous to researchers. In order to interpret the results of research on tissue samples, it may be necessary for researchers to know some other things about the participant, for example gender, age and how their disease responded to treatment. This helps a researcher answer questions about the disease. All such information is routinely collected by the participant’s health care team and is stored as part of their medical record.
The tissue sample is stored anonymously but will be able to be linked back to the other information collected by the participant’s health care team during their treatment. Additional clinical information is supplied as needed to researchers, but personal identification is not. Identifying information will remain confidential to CCB staff. Additionally, no one outside the research process (eg third parties) have access to samples or results from any individual, which also protects a participant’s privacy.
All research involving samples must first be approved by the HREC of the institution where the research is being conducted; making sure it abides by the National Statement.
A HREC approved researcher who wishes to access CCB samples must apply to the CCB Management Committee. This Committee is made up of a panel of haematologists and interested professionals, who review all researcher proposed projects looking at the purpose and their scientific value.
Samples are only provided if the CCB Committee is satisfied that the proposed research has met and is of high scientific and ethical standards.
Feedback is important to CCB. Whether it is about ideas or suggestions about this website, or any other aspects of the research biobank, please do let the team know.
The website suggestion box can be used and don’t forget to tell CCB if you require a reply.
Participation in the CCB is entirely voluntary. There is no cost to participants, nor will there be any financial gain. The samples individually are of limited value. The choice to let CCB store tissue collected/removed at the time of biopsy (ies), and blood tests is entirely up to the participant. A patient’s care will not be affected by their decision in any way.
Participants can withdraw at any time without providing a reason. Participants wishing to withdraw should contact their treating practitioner or contact the CCB Manager to discuss the required formal withdrawal process.
Patients of the Princess Alexandra Hospital or participants enrolling in a specific clinical or laboratory based study may be also asked to participate in CCB. Patients and participants will be provided with a Participant Information and Consent Form (PICF) and will be given an opportunity to ask questions and discuss the CCB further with their treating clinician.
Donations to the CCB can be provided through the PA Research Foundation website by selecting ‘Cancer Collaborative Biobank’ on the drop down box for the ‘Donation Type’.