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A Framework for Consumer Involvement in Health Service and Clinical Research

Project Status: 

As noted by the NHMRC Revised Statement on Consumer and Community Involvement in Health and Medical Research, the benefits of consumer and community involvement in research include[1]:

  • Research being conducted that is relevant to community needs.
  • More effective translation of research to deliver improved health outcomes.
  • Effective communication strategies between consumers community members and researchers.
  • Improved openness and ethical transparency in the conduct of research.
  • Improved accountability and openness over the use of public money.
  • Increased opportunities to continuously improve the quality of research.
  • Communication being better informed and having a greater understanding of research.
  • Consumer and community expectations and ‘lived’ experiences are valued and incorporate into the development of research priorities and projects.
  • Consumer participation can be an important and effective driver for change, especially the translation of research findings into improvements to policy and practice.

Metro Health Health have partnered with Griffith University to develop a research framework and accompanying tools and processes to ensure consumers and community members are partners in research. This includes, but is not limited to:

  • Developing strategies to implement policies on consumer and community involvement, in partnership with consumers, consumer organisations and community members.
  • Building the capacity of researchers to involve consumers and community members as part of their research teams by providing training, access to resources and recognising good practice involvement initiatives.
  • Building the capacity of consumers and community members to become actively involved in research and work in partnership with consumer/community organisations for training, support and guidance.
  • Providing accessible and easy to understand information about the institution’s research activities.
  • Understanding processes for consumer and community involvement by including planned budgeted strategies in research projects.
  • Developing mechanisms to ensure the consumer voice informs research i.e. citizen science.

[1] National Health and Medical Research Council, (August 2014), Revised Statement on Consumer and community Involvement in Health and Medical Research – consultation version, Australian Government.

Aims & Goals: 

Metro Health Health have partnered with Griffith University to develop a research framework and accompanying tools and processes to ensure consumers and community members are partners in research.

Lead Service / Stream: 
Keywords: 
Consumer Engagement, Research, Research Framework
Last updated 20 September 2018